Episode 6: “It can shatter one’s dreams” a Sickle Cell Disease Survivor Says (Part 1)

ojo sefunmi sickle cell

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sickle cellA Sickle Cell Disease Surivor, Ojo Sefunmi, says the disease, can shatter one’s dreams. She made the statement on this episode of the charity connect podcast. Remember that on the previous episode, we solicited for donation of fund to #SaveNiyi, a Law Student of the Faculty of Law in Ekiti State University, Nigeria who was diagnosed with Lymphatic Cancer and Hepatitis B. We want to say thank you very much for your donations and sharing the episode on social media for others to listen to. Thank You, God Bless You.

Ojo Sefunmi, our Guest on today’s Episode, is a sickle cell disease survivor and Founder of the Sickle Cell Disease Awareness Campaigne (SCDAC). A group she started even as a student in a University. Her motivation for starting the campaigne is her pain.

According to her, not everybody can hold the pain of sickle cell disease that is why some tend to commit suicide… She was inspired after hearing of a girl online who committed suicide because people bullied her while in school.

Sefunmi is preaching that there is hope no matter what circumstance you find yourself especially to the sickle cell disease survivors. In her own terms, she believes she is keeping hope alive.

Sefunmi said that there are times she would feel pain of Muscle Pull, Vascular Necrosis or Sickle Cell Crisis for about 5 hours because of lack of drug as the drugs are expensive to get. In a month, she spends up to N10,000.

In this Episode therefore, you are going to learn:

  • what is sickle cell disease
  • the pain Sickle Cell Diesase Victims feel
  • what SCDAC is about and their challenge
  • Reason you should know your genotype

sickle cell

QUOTES FROM THIS EPISODE

“Bringing a child with sickle cell diesease is like calling a child to come and serve purnishment on earth.” Ojo Sefunmi

“Sickle Cell Diesease is like a journey…You start it from the day you are born.” Ojo Sefunmi

Sickle Cell Disease is like a journey, you start from the day you're born. Click To Tweet This is the first series in this episode and we will continue on the next episode… In case you have question(s) for Sefunmi, kindly drop them by using our comment box below. Also, we love reading your comments and feedback. Feel free to drop a comment below. Thank You.

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Episode 5: #SaveNiyi, a Lymphatic Cancer Student Cries Out For Help

#SaveNiyi
Niyi Before and After

Since last week, a campaign has been going on on social media, particularly Facebook, about #SaveNiyi, a student of Ekiti State University (EKSU), Ado-Ekiti, Ekiti State, Nigeria who was diagnosed with Lymphatic Cancer and Hepatitis B.

Remember that last episode, I celebrated my birthday and I asked that you help someone in need as a gift for my birthday. This is another way you can help someone in need.




In case you’ve not seen the campaign before, kindly read it below:

At a point we felt the hurdle had been scaled, the rubicon crossed and the storm be over, behold grief in a limitless fold on the surface.

You all remember a post of mine about my friend Kolawole Olaniyi Emmanuel whose health status lacerated my heart then? his health condition is not any better, I have not shed tears for any reason since 2007 but the pictures of Niyi has these tears budding because am depressed and dejected a dream as Niyi’s is on a frolic of perdition thanks to his health status but I know God won’t permit such, I have not known grief this much

He is a 400l law student of Ekiti State University, not just a barrister in equity but a bundle of talents woven in one person, humorist, intelligent, fun person but behold beyond a shadow of his own self, this lacerates the heart beyond words.

You cannot have attended UCAAD and not know Niyi. Talk less RCF EKSU. Members and Alumni of Faculty of Law EKSU, this guy play the guitar in the most unique way I’ve ever heard.

Niyi was diagnosed with lymphatic cancer and Hepatitis B on August 2016(his birthday month) at the university of Lagos university teaching hospital (LUTH),and since then, he has been bed ridden, dropped out of school and looks like a shadow of himself.

Niyi needs the sum of 3 million Naira for his chemotherapy treatments and dialysis to help save his liver and stop the cancer from spreading to other organs of his body.

Please let’s not allow the dreams and aspirations of Niyi to die.
We are appealing to kind hearted Nigerians to please help #saveNiyi.

Here’s his Acct details:
name: kolawole olaniyi
acct number: 0126045388
Bank name: Guarantee Trust Bank.
#SaveNiyi #SaveNiyi #SaveNiyi

Help a Lymphatic Cancer Student.

#SaveNiyiHelp a Lymphatic Cancer Student. #SaveNiyi Click To Tweet

Consequently, CCP was in the school to interview his close friend and some of his school mates. You can listen to it on today’s episode of the charity Connect Podcast.

It is interesting to know that Niyi is brilliant, a bundle of talents and someone that is useful to this generation and beyond.

Currently, Niyi has gotten ₦600,000 out of more than ₦3,000,000 (about $10,000) that he needs.

If more 3000 people can donate ₦1000 each, we can reach the target but that’s not even enough of what Niyi needs.

After your donation, you can come back to this page and comment “Done“.

Feel free to download this episode and share with as many people has possible.

Show Note/Links

Bank Account Details:
Name: Kolawole Olaniyi
Account Number: 0126045388
Bank name: Guarantee Trust Bank (GTB)

Bitcoin Address

1NKXeLHuhwwFSHyVH8qxZWaqUP5YCMvWfk

You can also scan this barcode to donate using Bitcoin:

CCP bitcoin address