Episode 7: Interview with Sefunmi, the Team Leader of Sickle Cell Disease Awareness Campaign (Part 2)

Interview sickle cell disease awareness campaign

Interview sickle cell disease awareness campaign

On the last episode, we had the first part of the interview with Sefunmi, a sickle cell disease warrior. She explained what sickle cell disease is, what SCDAC has been doing and many more. You can listen to the Last episode here if you have not.

On this episode, Sefunmi shares the principle that keeps her happy despite the pain of sickle cell crisis.

Anybody can take yesterday but nobody can take tomorrow from me. Click To Tweet
  • What SCDAC has done Before
  • How to overcome stigmatisation
  • Food that sickle cell disease victims don’t eat
  • Everyone, regardless of who they are, have dreams
  • The importance of campaign against sickle cell
  • The need for you to know your genotype
  • What brings Sefunmi happiness
  • Why Sefunmi believes that Sickle Cell Disease would be cured
  • The upcoming program SCDAC has

Quotes from the show

“I’ve learnt to train myself to be Sefunmi, not to be a sickle cell warrior.” Ojo Sefunmi
“Anybody can take yesterday but nobody can take tomorrow from me.” Ojo Sefunmi

Phone Number Mentioned: 

Sefunmi – 07065947360 

Links:
Instagram sicklecellscdac
Facebook: Ojo Sefunmi Ann

Bank Account Number
Ojo Sefunmi
3053933642
First Bank (Savings Account)

You can also donate with Bitcoin 

1Q9FnmwJPtnbgSMJkYUNc5oZCmz2XzWBaX

 

CCP bitcoin address
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Episode 6: “It can shatter one’s dreams” a Sickle Cell Disease Survivor Says (Part 1)

ojo sefunmi sickle cell

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sickle cellA Sickle Cell Disease Surivor, Ojo Sefunmi, says the disease, can shatter one’s dreams. She made the statement on this episode of the charity connect podcast. Remember that on the previous episode, we solicited for donation of fund to #SaveNiyi, a Law Student of the Faculty of Law in Ekiti State University, Nigeria who was diagnosed with Lymphatic Cancer and Hepatitis B. We want to say thank you very much for your donations and sharing the episode on social media for others to listen to. Thank You, God Bless You.

Ojo Sefunmi, our Guest on today’s Episode, is a sickle cell disease survivor and Founder of the Sickle Cell Disease Awareness Campaigne (SCDAC). A group she started even as a student in a University. Her motivation for starting the campaigne is her pain.

According to her, not everybody can hold the pain of sickle cell disease that is why some tend to commit suicide… She was inspired after hearing of a girl online who committed suicide because people bullied her while in school.

Sefunmi is preaching that there is hope no matter what circumstance you find yourself especially to the sickle cell disease survivors. In her own terms, she believes she is keeping hope alive.

Sefunmi said that there are times she would feel pain of Muscle Pull, Vascular Necrosis or Sickle Cell Crisis for about 5 hours because of lack of drug as the drugs are expensive to get. In a month, she spends up to N10,000.

In this Episode therefore, you are going to learn:

  • what is sickle cell disease
  • the pain Sickle Cell Diesase Victims feel
  • what SCDAC is about and their challenge
  • Reason you should know your genotype

sickle cell

QUOTES FROM THIS EPISODE

“Bringing a child with sickle cell diesease is like calling a child to come and serve purnishment on earth.” Ojo Sefunmi

“Sickle Cell Diesease is like a journey…You start it from the day you are born.” Ojo Sefunmi

Sickle Cell Disease is like a journey, you start from the day you're born. Click To Tweet This is the first series in this episode and we will continue on the next episode… In case you have question(s) for Sefunmi, kindly drop them by using our comment box below. Also, we love reading your comments and feedback. Feel free to drop a comment below. Thank You.

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